Chronically In Limbo

  Before I became ill with ME/CFS at age 21 I had never considered how much energy we use NOT doing things.  We all know that our daily activities require certain amounts of energy, even for healthy people. We all have different amounts of ‘baseline’ energy, that energy that we start the day with and is available to us to use however we wish to accomplish the jobs we need to get done. We know that our ‘baseline’ energy can be affected by things like a late night getting to bed, a bad nights sleep, not drinking enough water or getting enough nutrients in our food. And we all have a choice in how we ‘spend’ our energy, what we use it to accomplish. In fact there’s even a whole theory around this that chronically ill people use to try and explain it called “Spoon Theory”. Very quickly, (feel free to Google for more info) ‘Spoon Theory’ is the idea that we start the day with a certain amount of ‘spoons’ available to us, and that every daily activity requires differing amounts of ‘...

 Why is my blog named “Chronically In Limbo”? The chronic part is easy to explain. Mostly this blog will be about life with chronic illness. I suffer from several chronic illnesses including Fibromyalgia, ME/CFS, Osteoarthritis, Depression/Anxiety, and my most recent diagnosis of Functional Neurological Disorder (FND). Life with chronic illnesses can be tough with a lot of highs and lows, and having dealt with them for many years, I would love to offer help, support and encouragement to others in a similar situation so that they know they’re not alone. And also offer a window into the world of chronic illness for those who, while maybe not living with it themselves, would like to better understand it in order to be of help and support to friends and family in a similar situation. So why “In Limbo”? There are many reasons why people living with chronic illness may feel like their life is now in limbo, but I would like to tell you about my experience of it. One of the worst parts of ...